Mind Body Eds

In recent decades, thousands of people have been through the journey of discovering their connection with Ehlers-Danlos syndromes. On average, it takes over 19 years for individuals to gain proper recognition of their condition, due to the huge range of symptoms and a lack of clinical awareness. This means an average 19 years of not living with an accurate diagnosis.

As a charity we are strongly focussed on individuals, with the goal of making a positive impression on those impacted by EDS. We provide support by actively advocating and educating the general public and medical community through national campaigns; financially supporting individual sufferers and their families through offering grants; and contributing to vital clinical research activities.

We fully rely on voluntary donations, so we can only achieve our mission with your support.

We understand that when you make a charitable donation, you want to know exactly where your money is going to. We appreciate every single donation we receive and work hard to ensure that every pound is contributed towards our mission to help save and improve the lives of those impacted by the Ehlers-Danlos syndromes. 

Mind Body EDS® life-changing work would not be possible without generous people like you. Your donation will enable us to:

• Advocate our charity’s mission and educate about Ehlers-Danlos syndromes in medical schools across the UK

• Financially support EDS patients by awarding them grants to enable them to access limited specialists that will lead to an early diagnosis, treatment, medical aids/equipment, and management of their condition to prevent disabling or life-threatening damages

• Contribute towards research studies that will hopefully improve the quality of life of patients and find a cure 

Whatever you choose to do, donating, fundraising or raising awareness, we are eternally grateful and thank you.