TS Support Groups

Aim

To provide support groups for those with Turner's Syndrome.

Being diagnosed with Turner’s Syndrome can be a terrifying experience. Our support groups aim to be a place of comfort and discussion away from the doctor’s waiting room where TS girls and their families can learn to come to terms with the condition, the health checks required and the social aspects of what lies ahead. Being available at the earliest possible stage is priority because we aim to support TS girls in living the best life possible. 

Our support groups are generally driven by those who attend them. We can have information and professional medical advice available but they have also become a social hub where individuals and families who are caring for someone with a genetic disorder can meet in a comfortable environment.   

COVID19 has meant that we have unfortunately not had the means nor the opportunity to carry out in person support groups for those with Turner’s Syndrome and others affected. Being able to get more of these group up and running will be an achievement in itself and allow us to continue our mission to help TS women and girls achieve their full potential.

This project successfully funded on 6th January 2023