Hello to all who love to help and raise awareness for those in need,
My dear friends little boy five years old and battling with metachromatic leukodystrophy, which is a disorder that causes fatty substance (lipids) to build up cells, particularly in the brain, spinal cord and peripheral nerves.
It is very progressive loss of neurological function in the brain and body which occurred in our beautiful loving boy needs to be treated and cured.
It is 1/40.000 to 1/100.000 around the world its a mutation MLD.
Myself and my community gathered to help this boy to have travel to USA and get treated without suffering any more family of the boy quite poor and financial help needed urgently
Please do Not hesitate to look our story donate and share among others.
Update pictures follow up soon family lands in US hospital by next month starting their heartbreaking journey..