The UK Lived Experience Pain Project

by Pain UK CIO in London, Greater London, United Kingdom

The UK Lived Experience Pain Project

Total raised £162

raised so far

+ est. £27.50 Gift Aid



The UKLEPP will detail the day-to-day lives of those living with pain in order to educate and spread awareness.

by Pain UK CIO in London, Greater London, United Kingdom

The UK Lived Experience Pain Project, led by Pain UK aims to identify and bring to life the real experiences of people currently living with pain in the UK.

  • Approximately 28 million people in the UK live with pain (known to clinicians as chronic pain)
  • Around 20 million people live with mild to moderate pain, and around 8 million live with moderate to severe pain that significantly interferes with daily life
  • Living with long-term pain affects family and carers, ability to work, and employers and places a weight on health and social care services

The publications of this project, include a journal article in a leading peer-reviewed pain journal, and a strategic action plan for decision makers in the health services, and politicians.

This action plan is an essential step towards improving the lived experience for the millions of people in the UK who live with pain. 

The project researcher, Ms. Renee Blomkvist, has:

  • Produced a large review of the current published evidence on the lived experience of pain
  • Created a scientific survey, based on the review that has received over 1,000 responses from people who live with pain in the UK

The project Steering Committee, who help guide the project from start to finish, has members who have experienced pain.

We have collected the survey responses, and are planning the next phase of the project: 

  • To look at and analyse the responses of the survey
  • To conduct a number of focus groups with people who took part in the survey
  • To analyse and evaluate the focus group results

We need to provide our researcher, Ms. Blomkvist, approximately 6 months of time and funding and we can only do this with your help and generosity. 

Therefore, we kindly invite you to help support the next phase of this important project and improve the lives of all people living with chronic pain in the UK. 

Any donations not used for the UK Lived Experience Pain Project will be directed to Pain UK’s general work. 


Pain UK CIO - Charity number: 1191657

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