Medical treatment

Aim

I need to raise money to pay for private physio therapy and to get me to turkey to decompress my spine and fuse my pelvis.

Hello, I’m a solo mum, sadly widowed 3 years ago which affected my daughter’s MH. Pregnancy wasn’t the glowing beautiful experience people tell you about, my pelvis separated straight away, it was painful and I needed 2 pelvic joints fusing afterwards. It left me permanently disabled and in a wheelchair. But I’m not quitter, I had my nerves lasered off and with extensive rehabilitation I walked again. I didn’t just walk I ran, I got back horse riding, I did a couple of degrees so I could get a new career after I had to give up the job I loved and trained hard for. I got diagnosed with Ehlers Danlos syndrome, it hereditary and I wanted my daughter to see a diagnosis doesn’t stop you from living, and I really did live. We had so many adventures. Fast forward to 5.5 years ago, I had a bad fall off a tractor trailer, right on that one pelvic joint that wasn’t fused. I displaced it and due to my EDS they left it dislocated. I still tried to keep going, but that instability had a knock on effect with my spine. 18 months ago I was told it’s collapsing and I will end up paralysed, I daughter out a 2nd opinion, then a third etc, I have hit so many walls, until this week. A pain consultant is going to sever the nerves in my spine and pelvis, cutting off the pain signal. This isn’t a cure, but what it means is I can start engaging the muscles that support the spine and pelvis. Great but another brick wall, I can’t get the intensive rehabilitation needed under the NHS, we tried in Nov last year when the nerve block injection was in to be told I already know the exercises and discharged. I need hands on physio to release the muscles that have over compensated which prevent the inner muscle that supports the spine to work. I need hydrotherapy first so we can get muscles working when I am weightless. Unfortunately as this condition has progressed I have spent money on disability aids, walking sticks, rollator and electric wheelchair, ramps, all these magic devices that are supposed to cure or help I’ve bought, I have run up so much debt, sold everything I could, I am out of funds, sold I am asking for help. I am currently house bound, the instability in my pelvis has now gone up to my neck and effecting my vision. I am no longer living. I’ve been given a life line to get my life back, so I can be a mum again. I also spoke to a spinal surgeon in turkey, they have rheumatologists on their team and can operate and fix the pelvis and prolapsed discs and decompression in my spine. It’s not cheap but compared to how much it’ll cost in the UK (well over £50k) it’s a great option. But physically I can get there. I need the nerves lasered and the extensive rehabilitation first. Please help me

Funding method

Keep what you raise – this project will receive all pledges made by 14th August 2026 at 4:16pm