The Psoriasis and Psoriatic Arthritis Alliance (PAPAA)

PAPAA has always known that the day-to-day struggles of living with long-term medical conditions and the problems that are faced by those affected, should be recognised as a serious issue. 

As a patient-centred charity providing appropriate care and support is the centre of our work; we aim to be honest without bias. What we develop and deliver is influenced by the people affected by the conditions. We believe that by involving people who are actively affected by psoriatic disease, the charity has the focus and insight needed to provide services that people in the 21st century really want. 

We have a goal to see a world where psoriasis and psoriatic arthritis are no longer poorly recognised, this is why we support research into the causes, which could lead to finding a cure.

Our statement of intent

• Our vision: To see psoriasis and psoriatic arthritis managed in a positive way, more effectively.
• Our mission: To put people with psoriasis and psoriatic arthritis at the centre of care, deserving of recognition and effective management.
• Our values: To act ethically, with integrity on behalf of our constituent group and represent them fairly.
• Our strategy: To educate and empower people affected by psoriasis and psoriatic arthritis and those who provide the support and medical care, in order to optimise available resources more effectively.

Help PAPAA make a difference

As a patient-centred charity we understand what is important to people living with psoriasis and psoriatic arthritis. Your support will help us in our mission to make a real difference and change the view of psoriatic disease forever. Your support will help us to continue to raise the profile of psoriatic disease and support those affected by this debilitating condition. It will also help us to educate the healthcare professionals that deal with psoriasis and psoriatic arthritis.  Our ongoing research activities will also be boosted by the support you give to achieve our goal of finding the answers that will lead to a cure.

What has PAPAA achieved?

Below are some of the key differences that the charity has achieved thanks to the many supporters and donors who believe in the work we have undertaken:

• The most comprehensive psoriatic disease specific website in the UK, with nearly 10,000 free to access items and pages.
• A range of 23 printed leaflets on the core aspects of psoriasis and psoriatic arthritis, with more than 200,000 distributed free in the last 10-years.
• More than 1,000 health care professionals provided with free patient support material.
• Supported more than 3,500 UK pharmacies to provide free patient resource at the point of medicine delivery.
• Biannual journal called Skin ‘n’ Bones Connection regularly distributed since 1993 to patient and a wide range of healthcare providers.
• Engaged and represented your views with UK regulators including NICE, SMC, AWMSG and the MHRA to provide input into new drug appraisals and regulatory affairs. 
• Actively engaged across the most popular social media applications, with around 10,000 interactions.
• We have gathered real stories via our engagement group and PAPAA surveys with more than 5,000 individual views and suggestions from lived-experience of psoriatic disease.
• Around three-quarters of million pounds provided to support research and training initiatives in psoriatic disease.
• Regular updates provided via an eNewsletter to more than 1,300 people.
• Trained multidisciplinary healthcare professional via our CPD accredited Psoriasis in Practice programme, with many subsidised to access the training at no cost.
• Provided anonymised access to peer-support to those often desperate for someone to listen and hear their voice.

Thank you for considering PAPAA as a worthy cause for your support.