Always on
This project successfully funded on 30th March 2026, you can still support them with a donation.
Mind Over MRKH Syndrome - No Womb, No Less Worthy.
Twickenham, Greater London, United Kingdom
Aim
To improve wellbeing for those with MRKH syndrome, by funding a digital and printed magazine, podcast, art projects and community workshops.
Let’s help everyone with MRKH syndrome flourish
What is MRKH?
MRKH (Mayer Rokitansky Küster Hauser syndrome) is a congenital condition where females are born without, or with an underdeveloped, reproductive system. It affects around 1 in 5,000 female births worldwide.
Those with MRKH typically produce female hormones and have functioning ovaries, but do not have periods, a uterus, or a cervix. People with Type 2 MRKH can also experience additional developmental differences, including kidney or spinal differences, and more rarely hearing impairments or heart conditions.
MRKH is often diagnosed during adolescence and can have a profound emotional, psychological and social impact.
Why this fund matters
This fund exists to grow Mind Over MRKH as a community, arts and wellbeing led platform that supports people with MRKH through storytelling, skill sharing, education and community healing.
We are funding podcasts, visual storytelling, print and digital media, wellbeing workshops and community building initiatives that are created by MRKHers, for MRKHers. Our work focuses on self acceptance, knowledge, creativity and peer support, not just diagnosis or clinical narratives.
Founder story
After being diagnosed with MRKH at 16, founder and Director of registered not-for-profit Nestii CIC, Ellamae Fullalove, felt completely broken and alone. For years, MRKH was something she hid. It wasn’t until her 20s that she actively began seeking friendship with others who truly understood the experience.
What started as a small UK based Facebook group and a single dinner evolved into @mindovermrkh. With a small team of friends, Ellamae helped create chat groups, online wellbeing content, creative workshops, social events and multiple awareness raising projects. Mind Over MRKH is a grassroots community that has grown rapidly through voluntary work - we aim to grow our team of MRKH advocates and creatives to build an ecosystem of MRKH support.
Since then, Mind Over MRKH has:
- Hosted countless in person social events
- Curated visual story telling content for MRKH
- Delivered global online wellbeing workshops
- Produced a global podcast, interviewing MRKHers worldwide
- Sent gift boxes to newly diagnosed individuals
- Created an online and print form media
Today, we have over 100 members in our moderated London WhatsApp group alone, with new podcast episodes currently being scheduled and a growing team focused on storytelling, arts and wellbeing media that involves the community and delivers peer support initiatives.
What we are funding
We aim to fund the next phase of Mind Over MRKH, including:
- A relaunch of The Mind Over MRKH Podcast
- Visual story telling and arts including working with the community to create short films and photography projects.
- Digital and printed magazine alongside digital editorial content/community events
- Online and in person wellbeing workshops such as a self esteem photo shoot
- Ongoing community building, moderation and innovation
Our Instagram community has grown to over 2,000 followers at @mindovermrkh and we have just launched our new year project, @mrkhnest, which aims to build an ecosystem where people with MRKH can thrive as individuals beyond diagnosis.
Our community led work also enables us to grow opportunities for MRKH creators, practitioners, podcast hosts, writers and workshop facilitators. We aim to collaborate openly with all MRKH organisations and ensure our work benefits the wider community. We are currently heavily involved and co-creating MRKH One, a global collective of change makers.
All of this builds toward our long term vision: a dedicated mobile app for the MRKH community. The more we grow sustainably now, the more we can commit to larger scale, funded collaborations in the future.
How the funds will be used?
The Mind Over MRKH Podcast
A storytelling and wellbeing podcast sharing lived experiences from MRKHers worldwide, alongside short form guided wellbeing content written and produced by MRKHers.
The 2022–2023 series was a huge success. Relaunching in 2026, we are returning with a stronger format, expanded team and opportunities for ethical brand collaboration.
We aim to produce 24 Podcast eps this year, providing a range of resources for and by the community.
For anyone sponsoring £250 - your brand, charity or platform will become an official sponsor receiving a shoutout, links to your site and a social media post thanking you for your support and promoting your work. Your donation directly supports curating each episode professionally and growing its reach, as well as all profits being invested into all of our wider story telling and community work.
Digital & Printed Magazine
A collaborative global magazine featuring lived stories, artwork, journaling prompts, written submissionbrand collaborations and verified resources.
We already do the work in providing digital editorial information and aim to grow our network of creatives to publish mini digital subject based zines. This makes MRKH resources less clinical, more human.
The next step is printing and distribution.
We aim to curate and print 500 copies for the UK as a starting point
Wellbeing Workshops
Since lockdown, we have hosted educational, creative, and wellbeing workshops, covering topics such as writing, art, pleasure and self acceptance.
We aim to fund at least one workshop or course per quarter, building a trusted network of MRKH facilitators and practitioners. These workshops also inform our future app learning resources.
Monthly running costs
Website hosting, Zoom, podcast platforms, and design tools.
Even if we reach our target, the team will continue to volunteer significant time to:
- Create free online content and resources
- Support other charities and organisations
- Run free events
- Moderate chat groups and safeguard community spaces
- Lead wider charity strategy, innovation, and collaboration
The bigger picture
This work is led by Nestii CIC, a registered not for profit organisation. While this fund focuses on MRKH, our innovative approach to health condition community building can support other marginalised and rare health communities in the future.
We aim to offer free consultation and knowledge sharing to help improve wellbeing support across the sector.
Thank you for supporting this work. We may not reach our full target, but MRKH deserves investment, visibility, care, and joy. We’re only just getting started.
Funding method
Keep what you raise – this project will receive all pledges made