Climbing Yr Wyddfa for Chairi Malformation

Aim

i want to not only raise money for a charity close to my heart but also raise awareness on Chairi Malformation a rare neurological condition

Last year my son was diagnosed with Chairi Malformation, a very rare incurable neurological condition where his skull is too small for his brain causing it to be pushed  down into his spinal canal through a gap at the bottom of his skull. From the age of 10 months old he has been suffering with horrible symptoms, including projectile vomiting, excruciating headaches, Cerebrospinal fluid leaking from his nose and loss of balance. He has been in and out of hospital for MRIs, CT scans, constant checkups with his neurosurgeon and specialist, but due to lack of research we are told the only thing they can do for us is an operation to take away part of his skull, which will help with the pressure on his brain but not cure him. He will have to live with these symptoms plus more for the rest of his life.

 September is Chairi Malformation Awareness Month so on the 28th of september me and my family would love to do something fun in order to raise money for an amazing charity that are helping with the research into his condition.

Any money anyone can donate for this wonderful charity would mean to world to me and my little boy, but more importantly please help me to raise awareness on this very rare and awful neurological condition. 

Thankyou so much 

Funding method

Keep what you raise – this project will receive all pledges made