Please help save harley he’s being slowly crushed to death by he’s own spine
The uk have deemed him in operable but without operating Harley will continue to deteriorate loosing all lung function being on a full time ventilator he’ll need a tracheostomy unable to breath a feeding tube and he’s rib cage will fuse to he’s spine causing unimaginable pain and suffering until he passes.
However we have found dr lenke in New York after getting a third private opinion in the uk. We have had a meeting with dr lenke he’s certain he can help Harley stop him getting worse and improve he’s quality of life and restore some lung function.
we’re running out of time and desperately need your help please if you can donate and help save Harley’s life he’s only 15.
update we’ve now been told we need 250000 for these operations which seems impossible but I can’t and won’t give up please help
This project successfully funded on 1st May 2026