Always on
This project successfully funded on 1st November 2024, you can still support them with a donation.
Epilepsy Surgery to give Kaitlyn her life back
Portsmouth, England, United Kingdom
Aim
The aim of this is to get Kaitlyn the surgery she needs to help give her some sort of normal life back from this awful illness.
- Kaitlyn has NPRL3 Medication Resistant Focal Epilepsy. She is 1 of 100 in the world. Although on the outside she appears to be an average healthy little girl... this little lady has to take 19 tablets a day to dull her clustering seizures but as she is medication resistant unfortunately she also has to regularly have rescue medication and IV drugs to stop seizure clustering which can be anything from 50-100 seizures in 24 hours. The NPRL-3 gene now means that the majority of surgical options are unlikely to work so we have to either wait for new research which we don't know will ever arrive or try and raise funds for her to have LITT (Laser Interstitial Thermal Therapy) Surgery. A surgery option that although so far seems to have a better success rate with Kaitlyns type of Epilepsy presentation, is not available on the NHS to her yet. We cannot do this alone. WE NEED YOUR HELP!! So over the next year we will be trying to raise as much money as possible with fundraisers etc to try and get this surgery for our daughter. We are trying to give her her life back. Please can you help us.
Funding method
Keep what you raise – this project will receive all pledges made