Always on
This project successfully funded on 30th January 2025, you can still support them with a donation.
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This project successfully funded on 30th January 2025, you can still support them with a donation.
Aim: I'm raising funds to help cover the everyday running costs of Endometriosis South Coast.
Hi, I’m Jodie Hughes, the founder of Endometriosis South Coast, a researcher, and an advocate for those living with the life-altering condition of endometriosis.
💬 Why I'm Fundraising
I live with multiple chronic illnesses—including endometriosis, MCAS, M.E., POTS and fibromyalgia—and I know how it feels to be dismissed, unsupported, and left behind by the healthcare system. That’s why I started Endometriosis South Coast: to ensure no one else feels that way.
But we receive no core funding, and running our services—outreach, safe spaces, education, peer support—all cost money. With endometriosis still severely underfunded and misunderstood, we’re relying on our community to help us keep going.
🔬 Why Research Matters
Endometriosis is not just a painful period—it’s a whole-body, life-altering disease. Yet it takes an average of 8 years to diagnose, and treatment options are still limited, outdated, and often ineffective.
Without proper funding, research into causes, better treatments, and ultimately a cure remains slow and inaccessible. People are suffering in silence, and their pain is often normalised or dismissed.
Endometriosis South Coast fights for change—not just in care, but in research access and representation, especially for those from marginalised backgrounds. Your donation helps us push for more funding, more data, and more understanding of this devastating condition.
🧗♀️ My 2025 Challenges
This year, I’m pushing myself beyond my comfort zone by taking on two huge physical challenges, despite the conditions I live with daily:
July: Abseiling 100 metres down the Spinnaker Tower
October: Running the 10-mile Great South Run
Every step, every drop, every ache is a reminder of why this fight matters.
💸 Where Your Money Goes
Your donations will directly fund:
Printing and resources for awareness campaigns
Training and supporting volunteers
Outreach and community events
Advocacy for better research and equitable care
Even a small donation helps us keep the lights on—literally and figuratively—for people who feel left in the dark.
🙌 How You Can Help
Donate whatever you can
Share this page with your networks
Follow and support us on social media
Cheer me on in July and October!
Thank you for standing with me—and with everyone battling endometriosis.