My name is Lisa and I have Hashimoto's Disease. In other words, an underactive thyroid. There are over 300 symptoms of this disease, and I still have 84 of these because of a high cortisol problem. (You can see the start of a thyroid goitre in my cover photo, taken just before I was diagnosed.)
Many people who have this disease are perfectly happy on a prescribed hormone called Levothyroxine. When I was diagnosed in 2012 I was prescribed this. I did not get better. My prescription amount was raised each time, in the hope that it would work. It didn't, in fact I felt worse. My GP sent me to an Endocrinologist to see what was wrong. They didn't know, some didn't care.
This is where I turned to Thyroid UK. I found out that part of my problem was that my body could not convert Levothyroxine (T4), into the usable hormone T3. I went back to the Endocrinologist to ask for a prescription, they refused, saying that it did not work, and that Levothyroxine was the only hormone that was available. I later found out that the only reason that they don't prescribe T3 (Liothyronine), is that it was ridiculously expensive.
At this time I could still work. So I bought T3 from abroad. It was readily prescribed, and in some countries you could buy it over the counter. As I cut down Levothyroxine and upped the T3, I gradually started to feel better and better.
In 2015 I lost my job. I also started to feel unwell again. For 5 years I have had numerous tests and scans, and the only thing that came up was high cortisol (This is still ongoing).
I have constantly tried to get T3 prescribed, and they agree that I am better on it, but they still keep refusing, even when they know I can't afford to pay for it. But they are willing to monitor me on it.
I need help to buy my T3, various supplements (which make life more bearable), and to have private tests done which the NHS won't do.
Thank you for reading this.
Any contribution is very much appreciated.