After a severe spinal cord injury in early 2018 I was told I may never walk again... after a lot of hospital visits and physiotherapy I was able to stand unaided.
Around November 2018, I woke up one morning and collapsed, I had no sensation in my lower body and I couldn’t stand up, I was taken to the hospital and after many more tests they didn’t know what had caused it, so they sent me home.
After a few days , it slowly faded and I was able to stand again. But, a few weeks later it happened again. It was on and off every few weeks and could last from a few hours to a few months. This is when I got diagnosed with periodic paraplegia. (Episodes of paraplegia)
During these episodes, I would use a wheelchair, but after a trip to the beach where my friend broke my chair, I started struggling to cope.
I moved out of my parents house into an independent property and got a cheap wheelchair to help me get around until I could afford a permanent wheelchair.
The wheelchair I am currently using is big and heavy and very difficult to manoeuvre. I can’t take it out because it doesn’t fit through doorways and wouldn’t be easy to handle in shops. It also has no clothing guards or foot plates so it wouldn’t be very convenient. So I only use it to get around my house. Meaning that during these episodes I can not leave my house, which makes living independently almost impossible.
This isn’t good for my mental health as I have always been an independent person.
I’m currently saving up for a new chair and accessible driving lessons to help me get around and I appreciate any help I can get. Please share this and thank you for taking the time to read this. Xxx