I am going to be walking from one side of the country to the other to raise funds for The Heart Hive.
The walk will take place this summer and will see me walk the length of Hadrians Wall over a period of a week.
All the money raised is going towards to the charity Cardiomyopathy UK to help fund The Heart Hive Project. The project aims to be a game changer in how patients can get involved in research, and speed up the whole process of finding cures and treatments for people living with these conditions.
I will be taking some banned substances :)
As you may know i was diagnosed with Cardiomyopathy 18 months ago, I'm lucky in that it does not impact my day to day life severely at this time, but i am on a range of drugs for my condition to stop it progressing.
How long is that walk?
86 Miles from coast to coast - with a fair bit of up and down.
Am I in shape to do this?
In short, no. The work starts today, I will need to build up to this
Some more background
6 years ago I sent a random email to a website called people fund.it and such started the magical journey as a founder of Crowdfunder.co.uk
Shortly after being diagnosed my fellow founder Rob handed me a newspaper article that mentioned George Micheal had died from Cardiomyopathy and that a Cardiologist, Dr James Ware, was looking for funding to help with his teams research.
And another random email to Dr James Ware then lead to a magic journey, which has seen me get involved with their plans and helping as much as I can with fundraising. I have leant more than I ever thought possible about this condition, the available research and path to solutions, I have also been totally blown away passion of the researchers working on this.
More about the platform
You can see more about the platform I am raising for here
Where will your money go
Every £150 raised enables us to offer our pilot projects to one more participant.
- £125 pays for the full sequencing of genes linked to inherited heart muscle disease for one participant
- £15 pays to collect a saliva sample through the post, and extract DNA
- £5 pays to extract DNA from one saliva sample
Want to come along?
If anyone wishes to join me for all or part of this then the more the merrier!