Ellie was diagnosed with muscular dystrophy at the age of 3 which affects every single muscle in her body. Her dad left before her diagnosis however I was lucky enough to stumble into my wonderful fiancé who loves us both to the stars and back.
Ellie is unable to control her own head, stand or sit, has developed an ‘S’ curve in her spine and often has difficulty breathing.
Over the last few months Ellie’s condition has deteriorated so badly she’s in too much pain to use the specialist seat she has downstairs or go to school, leaving her completely isolated and permanently ‘life limited’
Due to the nature of her condition, dispite being a happy little girl I would love to see her free of all the pain just for a short while and to enjoy what precious time we have with her.