STOP ULTRA RARE BEING UNFAIR , FUND THE GAP.

by c.roberts in Amersham

We did it
On 31st July 2015 we successfully raised £6,842 with 146 supporters in 28 days

Providing interim funding for all Morquio children and young adults , who have been let down by NHS England until October's decision.

by c.roberts in Amersham

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nannyflack 13th July 2015

Chin up people, not everyone is like that awful Bercow piece of rubbish. Keep up the good work and good luck. God bless.

barbara.ann.clough 12th July 2015

Hope your son gets further treatment without any more delays and I wish him well with his future,I have a grandson with a rare disease and I can understand what you are doing though...As for the Government and NHS I cannot comment.

clewis 12th July 2015

I was utterly disgusted by the speaker's comments, as am I that the nhs hasn't funded this. Sorry I don't have a lot to give but I'm giving what I can. Praying you raise the full amount xoxo

aishaseedat 11th July 2015

Aisha, This drug maybe too late for you, but I admire your perseverance to help all others with Morquio. May Almighty Creator bless you and reward you abundantly. Gulam Seedat.

otleyres 10th July 2015

It is absolutely wrong that our government and NICE are delaying such a vital issue, where a drug can make such a difference to sufferers' lives. Thank goodness that MP Greg Mulholland is being so supportive of the families involved.

sarahmumford 3rd July 2015

Good - this is definitely worth a try - glad it's been started - now let's get sharing - to many to pledge a little and to those we know who have more who can pledge more. Will be willing and praying you reach the target asap.

wombleworm 3rd July 2015

Can't imagine a more worthwhile cause will do everything possible to get the message out :) let's see how many people we can get behind this!

dave.fitzroy 3rd July 2015

Its shameful that this needs to be done but we can all do our part to STOP ULTRA RARE BEING UNFAIR , FUND THE GAP FOR MORQUIO DISEASE

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Thank you from all the children and young adults with Morquio - a personalised thank you postcard will be on its way to you soon.

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