Our youngest son Joshua was born in 2009, and developed typically until 2011. Just after his 2nd birthday Joshua contracted chicken pox, 3 weeks later he had, what appeared to be, a stomach bug, he was clingy, unhappy and only wanted cuddles however hours later he then became unresponsive and was rushed to hospital. he was put on life support and moved by Childrens Actute Transport ambulance to Addenbrookes hospital where we were told that things were critical and Joshua was unlikely to make it through the night.
Despite these odds Joshua survived and a week later, after being diagnosed with Chicken pox Encephalitis was discharged home.
Encephalitis is a serious condition where the brain becomes swollen and whilst some people make a full recovery, many are left with long-term problems due to damage to their brain. It has taken myself and my family three years of researching, pushing and chasing to have Joshua diagnosed as having an acquired brain injury as a result of the Encephalitis.
Joshua has a complex speech and language disorder, sensory processing disorder, Dyspraxia, fatigue, insomnia, mood swings, lack of concentration and suffers with mood swings. Academically Joshua functions around 5 years below his chronological age and at the age of 9 plays with toys aimed at 4 year old. Unable to manage at Main stream school Joshua is now educated in a special needs school.
Because of the issues that Joshua has we are no longer able to have him share a bedroom with his older brother Jack, who was beginning to suffer due to poor sleep and Joshua is now sleeping on a camp bed in Myself and martins bedroom which is obviously unsustainable, as a couple we have no private space, Joshua has no space to call his own and as he grows up this can only get worse.
we have applied for and secured a Disabled facilities Grant to build a small bedroom at the rear of our home however the grant is approximately £10,000 short of what is needed to complete this work. We are as a family desperate. My daughter has recently been diagnosed with Epilepsy and her seizures are often stress related, Joshua has nowhere to retreat to when he becomes over sensitive or over tired, we are all suffering. everything that we earn supports our family, we don't have holidays, Martin and myself don't go out, we work hard but still we are unable to gather together the funds required to improve the lives of our family.
Any help that you can provide would be so very gratefully received.