This is an Emergency Situation - ME North East is in Financial Crisis
ME North East is the only charity delivering direct services to people with ME across this region. We receive no statutory funding for our work, charitable funding is diminishing and competition to access funds is growing exponentially. With the recent loss of two major funding providers we now face imminent closure and fear for the future of the 12,000 people with ME in our area.
Over the past 20 years we have helped over 2,000 people (500 of whom are children and young people), without our help and support people with ME will have nowhere to turn. This illness continues to be stigmatised and disbelieved, and for many of our members just knowing we are there, willing to listen and understand is of great value to them. There is no NHS provision for children across the North East, adult services are sparse and only available as an outreach service. 25% of people with ME are severely ill and housebound.
A recent bid to reinstate our adult services project worker was rejected on the grounds that we could not guarantee sustainability – a response that is now being repeated in other bids for core services.
At this moment in time we only have funds to remain in operation for a 3 to 4 months. Every effort to overcome this financial crisis is being made, however, we do feel you need to be aware of our imminent demise. We have written to all regional MP’s asking for their help and support, we are planning major media coverage to coincide with events happening for ME Awareness Week and hope that you will be able to add your voice to our call for help.
To remain in operation we must secure funds for our core services (office, IT, running office costs etc.) but we must also retain our remaining staff. We continue to submit bids to grant funders to secure our future but we need an immediate influx of funds to avoid closure.