100,000 people in the UK have dystonia and yet the question we get asked most is "what is dystonia" it is a multi-faceted neurological movement disorder, It causes uncontrollable muscle spasms and it can contort individual body parts; for example, your hand may be stuck in a backwards position or your neck may be constantly pulling to one side. In adults it tends to affect one or two areas of the body and in children it is more generalised across the whole body. It can be a painful condition and while there are treatments that may help, there is currently no cure. Your pledge will change the lives of families who often feel alone and forgotten.
The Reach Out, Reach All project aims to bring the dystonia community together, through film, animation, podcasts and webinars. Dystonia can be an isolating condition. It can be scary not knowing what the diagnosis means, not only to your life but also how it might affect your friends and family. While the community is large, it is also regionally diverse and this can lead to people feeling unsure and alone.
In the video below, one of our supporters, Sam, explains the real difference this project and your support, would make to her and her family.
With the money we raise from this appeal we will start creating the content that we know our supporters need. This will not only give people with dystonia a voice but also the opportunity to see people with the condition and learn how they navigated their journey.
How we will spend the money?
The £5,000 will be broken down allowing us to create:
- Pre-prodution planning,
- A 2-3 minute short video,
- Fully edited footage,
- Social media clips to raise awareness of the series,
Provision for the series to be sent out to our support groups in order for the series to be seen by people who do not have the internet to access these films.
If we were to reach our stretch target we can make a further 3 films allowing us to provide even more accessible advice and support on the topics our supporters need.
Thank you for your time, this series of films is invaluable to the dystonia community and we are so grateful for your pledge.