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Supporting children and adults with dystonia

by Dayna in London, England, United Kingdom


raised of £5,000 target
70% 11 days left
This project will only be funded if at least £5,000 is pledged by December 20th 2019 at 12:00am

We aim to produce a series of short films about the milestone moments in our lives that for someone with dystonia present unique challenges.

by Dayna in London, England, United Kingdom

100,000 people in the UK have dystonia and yet the question we get asked most is "what is dystonia" it is a multi-faceted neurological movement disorder, It causes uncontrollable muscle spasms and it can contort individual body parts; for example, your hand may be stuck in a backwards position or your neck may be constantly pulling to one side. In adults it tends to affect one or two areas of the body and in children it is more generalised across the whole body. It can be a painful condition and while there are treatments that may help, there is currently no cure. Your pledge will change the lives of families who often feel alone and forgotten

The Reach Out, Reach All project aims to bring the dystonia community together, through film, animation, podcasts and webinars. Dystonia can be an isolating condition. It can be scary not knowing what the diagnosis means, not only to your life but also how it might affect your friends and family. While the community is large, it is also regionally diverse and this can lead to people feeling unsure and alone.

In the video below, one of our supporters, Sam, explains the real difference this project and your support, would make to her and her family.

With the money we raise from this appeal we will start creating the content that we know our supporters need. This will not only give people with dystonia a voice but also the opportunity to see people with the condition and learn how they navigated their journey.

How we will spend the money?

The £5,000 will be broken down allowing us to create:

  • Pre-prodution planning,
  • A 2-3 minute short video,
  • Fully edited footage,   
  • Social media clips to raise awareness of the series, 

Provision for the series to be sent out to our support groups in order for the series to be seen by people who do not have the internet to access these films.

 If we were to reach our stretch target we can make a further 3 films allowing us to provide even more accessible advice and support on the topics our supporters need.

Thank you for your time, this series of films is invaluable to the dystonia community and we are so grateful for your pledge.


This project offers rewards in return for your donation.

£5 or more

£5 Reward

your pledge will bring us a step towards creating this series of short films that will change peoples lives. Thank you.

£10 or more

£10 Reward

A hand written card from the team here at Dystonia UK, Thanking you for your support

£15 or more

£15 Reward

A hand written card from the people who's lives you will be changing and what it means to them

£20 or more

13 of 20 claimed

£20 Reward

A Dystonia UK Zip up hoody

£50 or more

0 of 10 claimed

£50 Reward

We will donate a place at the Dystonia UK annual conference 2020 to you or a supporter who could otherwise not afford to attend.

£100 or more

0 of 25 claimed

£100 Reward

to thank you for your donation you will be credited on one of the films as a sponsor of that film.

Let's make 'Supporting children and adults with dystonia' happen

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