Right now people and families affected by rare conditions are terrified about what the COVID-19 crisis means for them - cut off from their usual support networks, struggling to get information and self isolating to protect themselves they need our support now more than ever.

Like all charities we are already feeling the impact of COVID-19. We have taken the step of furloughing most of our staff team to reduce costs but this alone might not be enough - we desperately need your help to ensure we can continue supporting the thousands of people affected by rare conditions across the UK who need us now more than ever.

Please can you help?