Why I Am Fundraising
I was diagnosed with Functional Neurological Disorder in January 2019 after waking up New Year's Day unable to move the left side of my body and losing bladder function. I have relapsed several times since then and spent a total of 5 months in hospital last year with it. I remain a full time wheelchair user and suffer with left sided weakness, chronic pain, chronic fatigue, psychogenic bladder problems and trigeminal migraines.
Who Am I Fundraising For
FND FrieNDs are a befriending charity supporting service users with FND across the South West of England. They hold meet ups, craft days and events designed to bring people with FND together, make friends who understand what they are going through and reduce isolation. They also visit people in hospital or in their own homes if they cannot get out and about. They also run awareness days in hospitals and work to educate health care professionals about FND-a largely not known about and misunderstood condition.
FND FrieNDs supported me so much to understand and accept my condition after visiting me in hospital. I have met some amazing friends and always have someone to go to now whenever I need support. I even met the love of my life through the charity! I now volunteer for them too!
Why Fundraising Is Important
Due to the current coronavirus pandemic and not being eligible for government funding, FND FrieNDs are not able to run fundraising events to keep the charity running. Overheads and bills still need to be met to run the office which are currently paid out of reserves. This means that there will be less money to go towards supporting service users when everything is back up and running.
What I Am Going To Do
I recently had a relapse and can't access any physio or OT due to coronavirus so I am going to combine my own rehab with a sponsored event to raise money. In aid of my 30th birthday I am going to attempt to pedal 5K throughout the month of May on my rehab bike, using both my legs and arms! I would be very grateful for any donation, however big or small!