We are a team of Westminster students supporting Rainbow Trust, a charity organisation. Helping families whose child suffers from a terminal and life threatening illness.
We are raising £1000 to support families like Mikaere's. Mikaere suffers from Nonketotic Hyperglycemia. This is a genetic disorder characterised by abnormally high levels of a molecule called glycine. This affects infants with progressive lack of energy, feeding difficulties, weak muscle tone (hypotonia), abnormal jerking movements, and life-threatening problems with breathing. Mikaere suffers from toxic levels of glycine and uncontrollable seizures. This money would go towards supporting families like them in a emotionally, and practically way.
£1000 would sponsor one support worker to visit a family in London, once a week for six months.
Please help contribute to help make a families life easier, with the support from a Rainbow Trust family support worker.
Registered Charity No.1070532