The Chronic Granulomatous Disorder Society (CGD Society) is based in the UK and was originally registered as a charity in 1991 under the name The Chronic Granulomatous Disorder Research Trust. Over the years, the charity has transformed from a small parent support group into a leading global source of information and support for Chronic Granulomatous Disorder.
Donate to this charity
What is The CGD Society?
The CGD Society (Chronic Granulomatous Disorder Society) is a UK-based charity that supports individuals and families affected by Chronic Granulomatous Disorder (CGD), a rare genetic condition that impairs the immune system.
We provide crucial resources, guidance, and support to help patients manage this complex condition and navigate the challenges it presents.
What is CGD?
CGD is a primary immune deficiency that affects the body's ability to fight infections, particularly bacterial and fungal infections. It is caused by mutations in the genes responsible for producing an enzyme called NADPH oxidase, which is critical for white blood cells to kill pathogens.
As a result, individuals with CGD are prone to recurrent, severe infections and inflammatory complications, including abscesses in organs such as the lungs, liver, and skin. CGD can also lead to chronic inflammation, which can cause long-term damage to various organs.
How Do We Help?
The CGD Society has played a pivotal role in raising awareness, offering support, and contributing to research efforts to improve the lives of those affected by the disorder.
Our main services and initiatives include:
Support for Families and Individuals
Our team provides personalised support to individuals and families living with CGD, offering guidance on medical treatment, daily living challenges, and mental health.
We also have a dedicated helpline to offer confidential advice and help with practical concerns, from accessing specialist care to understanding the condition.
Information and Education
We work closely with medical experts to provide up-to-date, comprehensive information resources on CGD, including guides, factsheets, and research summaries.
Community and Peer Support
We are passionate about peer support networks, connecting individuals and families with others who share similar experiences. Regular events, such as family days and conferences, provide opportunities for members to learn, share experiences, and build supportive relationships.
Our work has had a profound impact on improving the quality of life for those with CGD and their families and fostering a supportive community. We are committed to advocacy, education, and research which has made our charity a central resource for the CGD community globally.