Seizure friendly play for my baby girl

Aim: At 11 months old my girl suffers with a rare variant of Turners Syndrome, SHOX syndrome and seizures. This money will help friendly play!

• Marnies story:

When I was pregnant with my daughter Marnie they told me she wasn’t growing. I decided to do genetic testing via amniocentesis, they explained there was less than a 1% chance she’d make it due to her Turner’s syndrome. Well, she made it and is the sweetest sassiest miracle I’ve ever seen. Since birth she’s had issues with her growth, sensory needs, heart, seizures/epilepsy, hormones and endocrinology involvement and genetic specialists.

It’s not been easy for her and she’s had well over 45 hospitalisations / A&E visits and appointments at only 11 months.

• Why she needs this:

  She’s one soon, and for her birthday I’d love to get her sensory friendly and seizure safe equipment because she absolutely deserves it, I’m only 19 and the cost of this is really high.
  
  the £500 alone only pays for sensory fibre optic cables and their power source etc. it’s just a gift I can't afford alone.

Some photos of Marnie: 
thank you for reading:)

This project closed unsuccessfully on 15th July 2025