This amazing man right here is my dad. In 2023 our world changed when he was diagnosed with MND / ALS and is slowly dying a horrific death. 💙🧡
Last year we found out he has a faulty gene C9orf72 and now me and my siblings are awaiting to see if we have it too. I quit my job to become dad's carer and although physically he is weakening daily spiritually he's the strongest I've ever known him.
He now relies totally on a wheel chair to move or go anywhere as he has no strength to get in and our of a living room chair and can't walk. Unfortunately his main wheelchair from the nhs was made wrong and he's on a waiting list of 300 people for a replacement (weve been told it could be months still yet)so he can only use a basic one he bought but struggles to sit in for more than 2 hours so he's spending most his day now in bed and I'm heart broken. He's fell over twice trying to get out of it and I just dont have the money to buy him a new chair. If I did i would have already.... he's my hero and my rock and I just hate that along with the dignity he's loosing by me having to help him wash,shave, dress and eat he's now got no independence to go anywhere as he hasn't got a suitable chair.
He's shown me his dream chair and I just hope if I can get enough people to help I could get this for him so he sees how loved he is.
He worked his whole life and im gutted i can't get him help from anywhere else. He really deserves the world and I just hope and pray that a miracle can occur from me posting this. Last summer he enjoyed going out with me and his grandkids I'd love him to have the opportunity to do this again and make memories for the time we have left
God bless you all 🧡💙