PEEPS

RCN 1179495, Manchester

We support families across the UK who have been affected by HIE (hypoxic-ischaemic encephalopathy). This is done by providing information (such as via parent packs for those in neonatal intensive care units), signposting to other charities/support groups, organising activities, peer support, funding for equipment etc.

Peeps is the only UK charity dedicated to supporting those affected by H.I.E. 

H.I.E. stands for Hypoxic-Ischaemic Encephalopathy. It is a lack of oxygen to the brain that can cause injury. Peeps was set up in 2018 by Sarah & Steve. The name came from friends who affectionately referred to their daughter Heidi as “Heidi-Peeps”.

Here’s a quick note from Sarah to explain why they set Peeps up:

"We found ourselves in the world of HIE when our daughter was born in March 2015. She stopped breathing shortly after birth; without any warning, our NICU journey began. Neither of us had heard of H.I.E. before, none of our friends or family had, and let’s be honest, it was a scary time. I googled it (going against the advice of all the nurses of course!). Luckily I found a Facebook forum for families. Without that group we would still have been wondering what on earth was going on! So, we wanted to change things a bit, reach out to families in the early days, and bring the
information to them, rather than them having to look for it."

Every H.I.E. journey is going to be different. There can be similarities, celebrations, uncertainties and worrying times. Peeps can be along-side you whenever you need us, whether that’s today, next week or in a few months’ time.