PACS19 support group has been an absolute lifeline for many of us over the last 18 months. We've taken part in, and shared research, many of us managed to get places on research where we had scans that we just couldn't get through the NHS.
We've shared our ups and downs , our learns , and our frustrations. We've been part of working groups , commitees , steering groups, parliamentary debates, WHO meetings , Taskforce meetings, patient advocacy groups, the list goes on and on. There is no such thing as a silly question, and it's a safe place where others understand what we're going through and support us.
All carried out by volunteers who are suffering from Long Covid / PACS
We set up a website and portal (which we crowdfunded last year) so that we could have everything in one place, where people could easily access it. We are now in a position where we need to crowdfund again to cover some upgrade / running costs / admin which need to be done by a professional.
If you are in a position to help in any way, every donation would be gratefully received ,
thankyou very much
the admin team