Maisie’s fairy garden wish Maisie is 7 months and has a extremely rare life limiting condition called Galloway mowat syndrome 6. We recently raised funds for her to have sensory lighting in which was fantastic and has helped her greatly. Maisie is only expected to live into early child hood and already is showing signs her liver and kidneys are slowing. Maisie will be non verbal, is NG tube fed ( currently awaiting gastro tube fitting) and will be non mobile. She is absolutely fascinated with lights and loves different textures. We would love nothing more than for her to experience star gazing with us on soft grass.
We have moved house due to Maisie needing space and adaptions, however we have a rubble site as a garden. We are trying to make funds as quick as possible to re turf and slab the garden so she is able to go out in to the garden and enjoy it. But at the moment it is very dusty, rubble and not safe.
any donation would be much appreciated. Thank you so much for taking the time to read Maisie’s story.