Independent Community Advocacy Network North (ICANN)

ICANN want to ensure that benefits are not taken away unfairly by improving access to disability benefits through appropriate/ better PIP assessment processes.

We work with the most vulnerable people who face the greatest challenges when dealing with the social security system. Our aim is to influence to ensure that improvements are made, and that the system is easier to navigate and fairer for all.

We are concerned that a future single assessment for both PIP and to assess fitness for work will disadvantage claimants. Currently, different sets of criteria apply for PIP and WCA.. A joined-up system whereby PIP entitlement and entitlement to the health element of UC could lead to those who are unable to work being discriminated against and those whose health or disabilities limits the amount or type of work they can do experiencing inequalities. Many have fluctuating conditions, and it appears that more consideration is being given to working from home options for disabled people than enabling them to be in the workplace. These limitations could lead to “in work poverty” as less opportunities for training and career advancement.

We want to ensure the voice of our client groups are heard within all the proposed changes. We believe that those with a learning disability, neurodiversity and/or mental health issues will be most negatively affected by this. Our work will evidence the need for access to advocacy and advice for all claimants.

The move to make benefit systems mainly accessible using technology, such as, online systems disadvantages those who are digitally excluded. If this is rolled out across all benefits, then more claimants are going to struggle to manage applications and ongoing claims. We want to be involved in the design of new application forms whether online or otherwise. They need to be fit for purpose and tested widely on these groups to ensure that they are accessible to all. The proposed changes to the PIP point system will make it harder for many to meet the threshold and will plunge people into greater poverty, worsening health and reduced general wellbeing.

ICANN have already been involved in research on client preference for methods of assessment, with the proposed changes we need to restart those conversations with those in power. Assessments are not always inclusive meaning we need to ensure that reasonable adjustments are widely available and well publicised.

Some of the language used in general communications from DWP and the assessment providers is not in plain English, not easy to understand, not inclusive and can be overwhelming due to the length and amount of correspondence sometimes contradictory. This causes misunderstandings and systemic issues leading to incorrect decision making, increased level of sanctions and more people needing to challenge decisions.