This is a rare condition. and people should not be left to suffer in this way when there are surgical options that could save their life. Having experienced severe dental pain, I can really empathise here.
You have touched our hearts with your story & are in awe of your strength, courage & resilience ... we would like to offer our love, contribution and ongoing support for your & your family and we will spread the word !! Xxx
Good luck sweetie. My husband had shingles on his face on top of operations in the same area and can well imagine what you are going through. May you be cured quickly and live your fullest life. X Gilly Pay