Elijah entered our lives on 23/05/2021 a bouncing beautiful baby boy, his sweet smile and giggles would warm any heart,
Around the age of 15 months we realised he kept getting blue lips with cold hands and feet, and that he has not attempted to talk.
After many appointments, we finally got a hospital appointment with a specialist at a hospital17/02/2024. Where we learned some devastating news.
He had 3 heart conditions - dilated ascending aorta - valve stenosis - leaking valve -this broke us, and he will forever be on medication and has to have monthly appointments to monitor the situation which will eventually require surgery.
Now back to his speech, we were also informed that he has cell damage and inflammation around his Broca's area which is associated with speech in the brain.
And was advised the his life would improve if he has Photo biomodulation and other laser treatments..
This will also help him with his heart condition, as he gets frustrated and angry due to not being able to communicate and this can cause blood pressure to rise which is not good for heart condition. so the treatment is extremely beneficial.
So we want to give our son a chance and help him with his speech.
Unfortunately his treatments aren't available on the NHS.
So we are looking for help to get him the treatment to improve his life and wellbeing.
Despite all the issues he has had to deal with at such a young age, he is a beautiful happy boy who is desperate to speak. And will improve his Dailey life and make him able to communicate his wants and needs.