Ectodermal Dysplasia Society
The Ectodermal Dysplasia Society is a charity dedicated to improving the health and well-being of people whose lives are affected by Ectodermal Dysplasia (ED). We work together with people who have ED, their families, researchers, health and other professionals to increase awareness and understanding with the day-to-day management of ED.
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Our mission is to promote awareness and understanding of the Ectodermal Dysplasias, by providing detailed information and practical advice to individuals and families affected by Ectodermal Dysplasia Also, to the medical professionals, local authorities, schools etc., who support them in living life to the full.
Our vision is that every individual and family affected by Ectodermal Dysplasia is equipped with the knowledge needed to manage the day to day symptoms of Ectodermal Dysplasia effectively.
The ED Society seeks to raise funds to provide support services, equipment and grants to families affected by Ectodermal Dysplasia.