Working throughout the UK, we assist families with Barth syndrome with support, information and access to expert care. We fund research into treatments and a cure.
Donate to this charity
Help us save lives and support families with Barth syndrome. We are a small charity fighting to better diagnose and treat this rare, life-threatening condition. Join our Barth community and make a real difference to the lives of our families.
Your support means we can help families from all over the UK attend specialist clinics in Bristol.
Your support means we can fund research into finding treatments and a cure for our families.
Your support can provide one on one support to a person in crisis.
Your support can provide specialist group workshops and a chance for children with Barth syndrome to meet and play with other children just like them.