The chairty's main aim is the identification and funding of high quality peer-reviewed medical research into finding a cure or treatment that will delay or prevent the disabling effects of Ataxia-Telangiectasia ("A-T"). Additionally the charity works to raise public awareness of A-T and to build collaborative partnerships with other organisations to help advance the understanding of A-T.
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1Action for A-T was established in 2012 by parents whose daughter was diagnosed with a rare life limiting neurological condition named Ataxia Telangiectasia (A-T). The charity’s mission is simple, we aim to speed up the process of identifying a cure for A-T or treatments that delay or prevent the disabling effects of this devastating childhood condition. We do this by seeking and funding high quality peer-reviewed medical research.
Since 2012 we have invested over £4.1million in 50 A-T related research projects globally and actively seek collaborations with the research community and likeminded charities to increase our investment and maximise our impact. The charity has its own highly qualified multi-disciplinary medical advisory and peer review panel and a grant management process which has led us to achieving a best practice award from the national Association of Medical Research Charities.
Further investment into A-T research is urgently required as there is currently no treatment or cure for the condition. 1 in 3 children with A-T will develop cancer or respiratory disorders at some stage and more than half will die before they are out of their teens. Despite these statistics, just 5% (less than £10 per child) of the UK’s annual research spend is committed to paediatric research. As a result, innovative and life changing research is going underfunded.
