Mahendra Ahirwar, 12, from Madhya Pradesh in central India, suffers from a rare condition that makes his neck bend and his head.
Mahendra Ahirwar, 12, says other children won't play with him and as his mum worries: "I wonder if death is the only treatment left to end his misery"
A family is appealing for urgent medical help for their son who suffers from a mega-rare condition which has left him with a twisted neck and a 'wasted' body.
Mahendra Ahirwar, 12, from a village in India's Madhya Pradesh state ,suffers from a mystery muscle-wasting disease, which has left him too frail to support his own body parts.
The boy's extensor neck muscles are unable to hold his head in place, meaning it constantly falls onto his right shoulder or his chest.
Mukesh said that in 2010, they went to the All India Institute of Medical Sciences (AIIMS) in New Delhi for treatment, where they slept on a pavement for more than a week, making bonfire of plastic rubbish to survive the winter cold.
He said doctors at AIIMS, the premier hospital, conducted series of tests on him but failed to diagnose the condition before they returned to their home as their cash ran out.
"We saved for almost a year for the trip and then it was a nightmare.
"All my savings were finished in days between food and treatment.
"I was almost left without money and I didn’t want to die on the road with my son so I returned to my village."
About the project
The money raised will be sent to the family to fund medical treatment / travel costs and to help improve the quality of this little boys life by contributing to better living conditions and to buy equipment eg: A much needed wheelchair.
Mahendra said that he dreams of studying in a university and moving to a big Indian city where he can take up a job and settle down with his parents.
He said: "I only want to go to school. I want to play and read books.
"I remain at home and only have to play with my siblings. I know once I get well no-one will tease me."
"Once I get well, I will work and marry," he said.
Lets help make Mahendras dreams come true.