Jolly Josh was developed based on our founder, Carole, and her experience trying to find resources within the community for her child, Josh, during/after his diagnosis with Mitochondrial Disease. There was nothing available to provide any support for her or facilities to enable Josh to reach his potential. She was disappointed and alone. The professionals she met with were linked in with over 150 families in similar situations across Rochdale, Middleton and Heywood but they weren’t able to share details to create networks that would have been invaluable.
Carole met one other parent and decided that she had to make something happen to create these networks to maximise Josh’s quality of life and the opportunities for other young people. She worked with professionals to create an activity session available/accessible for children and their carers with a range of needs. The sessions were scheduled to launch in September 2017.
Unfortunately Josh never got to see the opening of the charity or all the good work it would do in his name as he left us on 27th August that year. He was 15 months old. We like to think he’d love the activities and events that we deliver if he were still with us.
Now we are ready to move on to the next stage, developing a centre to enable us to widen our offering and respond to the massive challenges COVID has presented. The Centre is being built now, we need funding to enable us to fit our hydrotherapy pool, buy specialist sensory equipment and start running sessions for young people.