Try and imagine what your life would be like if you permanently lost your voice and had to live with new challenges and changes to your body. The loss of the voice box is what laryngectomees face daily. They have to learn to live with a 'new normal'.
The National Association of Laryngectomy clubs was formed in 1975. The purpose of the association is to look after the interests of all laryngectomee patients, their families and carers. Today NALC has over 65 clubs around the country. An important role of the clubs is to provide the sort of non-medical help and information that can only come from experience of living as a laryngectomee.
Our magazine, CLAN, keeps members up to date with new developments and activities in our affiliated clubs. Our members really look forward to their quarterly update. Lots of our members do not have access to a computer, so the magazine is the only way to communicate with the laryngectomee community.
Our London office provides a nationwide resourse for laryngectomees who need help and advice. We also assist professionals who work with laryngectomees. NHS, Speech Therapists,Doctors,and advanced nurse practitioners all rely on and use our resourses which are freely given.
NALC also provides technical leaflets for medical staff, especially nurses in training and community nurses. We contribute to training days at universities and hospitals for nurses and emergency service workers, advising on the needs of neck breathers.
NALC has always provided the patients voice on national committees such as the National Cancer Research Institute (NCRI), the National Institute for Care and Health Excellence (NICE) , the National Cancer Registration and Analysis Service (NCRAS) and others.
NALC also supports research in a variety of ways, including serving on trial management groups.
NALC was fully funded by Macmillan Cancer Support since it was founded in 1975 up until December 2013, when after a strategic decision they chose to phase out the funding of all their associated charities, like NALC. Since then volunteer officers and the laryngectomee community has worked tirelessly to be able to continue to give advice and support, which is so desperately needed after the devastation of losing ones voice.
It is often assumed that throat cancer is caused by smoking and heavy alcohol consumption. One cause of cancer of the larynx is the Human papilloma virus (HPV)
The number of throat cancers caused by HPV has sharply increased over the last 20 years. Even with the introduction of the HPV vaccine in 2008 for teenage girls and more recently teenage boys, HPV related throat cancer is set to continue to increase in the future.
Sadly, NALC have been contacted in the last month by two young adults under 40 who have had a laryngectomy. We were able to provide not only information but someone who has experience of living with a laryngectomy , to talk to and to be reassured.
We are not a large charity with huge overheads. We operate from a very modest office in Battersea . We only have two members of staff and a great team of Officers who give their time and expertise for nothing. Everyone who is involved with NALC is so very passionate of the cause.
It would be a catastrophic loss to the lives of Laryngectomees and the healthcare professionals which work in those fields if we were not able to continue.
Please see our site to understand what a laryngectomee is and what is involved in our new way of living.
If you are able to help us continue the important work for this charity then please consider making a donation and also importantly, share and pass the links on to friends and family to help us gain more recognition.
We really need your help. Thank you.