There is no cure for what I have, and at present I am unable to do more than take a few steps without getting into breathing difficulties.
This operation will give me back some quality of life.
The University Hospital in Wales does perform the surgery I need, but after more than a year of trying to arrange it by both my consultant and my GP and getting no responses at all, I looked elsewhere myself.
I found that the Royal Brompton Hospital specialises in my kind of problem and began correspondence with a consultant there. He arranged tests for me which were done last month. But although he confirmed that they could do the procedure, because I live in Wales and not England, the hospital will not fund me.
Although it is possible that the Welsh NHS could fund the operation, because it is available in Wales, even though I can't get it done here, I have been advised that they are unlikely to help.
At present I am medically suitable for the procedure, but as time goes by that could change.
The cost of the operation is £30000 but that is for the operation only so I am trying to raise £40000 to cover after care and expenses.
I am 59, my husband is 63 and we are both on Universal Credit.