Help find a treatment for Iain

by Karen Servadei in Erith, England, United Kingdom

We did it
On 12th December 2018 we successfully raised £1,235 with 27 supporters in 70 days

To raise £4,700 to enable Iain, who has a degenerative condition called Friedreich's Ataxia try a new possible treatment.

by Karen Servadei in Erith, England, United Kingdom

We need to raise £4,700 to enable The University College London Hospital (UCLH) in conjunction with The Institute of Sports Exercise and Health (ISEH) to carry out a pilot study of a potential new treatment for Iain who has Friedreich's Ataxia (FA).  

In October 2014 Iain was the world's first person to ascend Mount Kilimanjaro in a mountain trike and also the world's first person with FA to reach that altitude.  Whilst at high altitude Iain noticed a dramatic improvement in his condition, which led to the idea that low oxygen levels may be beneficial for FA.  The funds raised will allow UCLH and ISEH to corroborate the findings under scientific conditions and hopefully pave the way for a treatment for Iain and others like him.

FA progressively affects the nervous system, reducing the physical capabilities of the sufferer, such as mobility, speech, eating and swallowing.  There is no cure- help us to try a possible treatment.

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