Support NICE, save society's most vulnerable
***Thank you so much to everyone who has supported us on this page so far, you are all part of helping us keep our services for adults going right now.***
Recently, our services for adults with movement disorders disappeared overnight. With strict self-isolation guidelines for over 70s, the vast majority of adults we support have found themselves house-bound for 12 weeks. Many others are too afraid to go outside and afraid their partner may become ill, leaving them with no support.
To ensure these disabled adults aren’t forgotten, at risk or battling immense stress, we have got creative whilst leaning on our sturdy framework of conductive education. This means that we have chosen to focus on what can be done in these unforeseen circumstances, rather than what cannot be done or what might seem hard at first.
We are urgently seeking funding to continue providing vital support for our adults right now. Sustaining our work with adults for the next 5 weeks would mark a significant step towards helping us secure the future of our adults' services.
Within minutes of closing the doors to our on-site adults’ services, kitted out with equipment and ample space for practical sessions, we began to innovate. To mitigate stark effects of isolation, each of our 147 adults has a professionally trained conductor they can contact as their main port of call for their physical and emotional needs. We cater to the digital access adults have; some can access apps, some only FaceTime, others without the technology will have their movement programmes and activity packs sent in the post and be supported regularly over the phone.
We have purchased Zoom rooms so we can help them connect with each other
easily without the need to understand complex technology. Our goal is to support, advise and enable them to retain the skills they have worked so hard to achieve. Over the coming weeks we will be expanding our input based on the needs and feedback from our participants.
This pivotal support is completely free, helping our families continue to thrive at a time when their well-being is hugely at stake. Many of these adults affected by conditions such as Parkinson’s, stroke and MS are already navigating their own ‘new normal’. This pandemic and the vulnerable, isolated status they hold as a result has meant that they once again face a brand new sense of apparent normality.