We are actively and fiercely raising money in support of the Tay Sachs community.
A darling baby boy, who is very special to us here at Haybury and is part of our Haybury family, has sadly recently been diagnosed with Tay Sachs.
Tay Sachs is a life-shortening, rare genetic disorder which currently has no cure.
Tay Sachs is caused by a defect in the HEXA gene which produces the beta-hexosaminidase A enzyme. The enzyme is important as it breaks down harmful waste products in the brain and without it these build up and cause extensive damage to the brain’s nerve cells. Physically, an individual diagnosed with Tay-Sachs will suffer a relentless deterioration of mental and physical abilities and in its most common form the symptoms commence around six months of age and result in death by the age of five.
Though there is currently no cure, it is important to support the families affected by the disorder and also support the efforts in finding a cure.
This year at Haybury, we will be going through a range of fundraising activities, such as:
- Brighton Half Marathon
- Sky dive
- Charity boxing match
- 10K a day
- Tay-Sachs coffee morning
- London to Brighton bike ride
- Brighton to Paris relay
Plus many more to come.
Please help us raise money and support for this very important cause. If you have any questions, please contact us.