My sister was diagnosed with MS aged 21. She had already been suffering symptoms for years, and has since lived with this crappy, debilitating disease for 17 years. She has good days and bad days, and totally sh*t days where her body doesn't work at all how it should, yet you don't hear her complain - she still looks at it that many others are worse off and not as lucky as she is, so she has to enjoy what she can and is grateful for it. She has continued working her entire life even though the easy option to give it up was offered to her years ago - she LIVES with this disease, and lives as well as she can. Even when the basic daily tasks of her life grind her to a halt she just rests and gets back in the game when she can - honest to God you may think I'm saying this just because she's my sister but if you knew her you'd be inspired. She has fundraised over the years for many charities, doing crazy stuff like skydiving to help others. She goes out of her way to do things for other people that most of us wouldn't have the patience for. Now I need you to please help her.
She has RRMS (relapsing remitting MS) where attacks or relapses are followed by periods of remission. She has been on various drugs and trials throughout her life, all with the aim of stopping it progressing as much as possible. Now though there is a new treatment available called Haematopoietic stem cell transplantation (HSCT). It is a procedure that aims to reset the faulty immune system. Haematopoietic stem cells are taken from your bone marrow or blood before your immune system is wiped out with chemotherapy. The cells are then reintroduced into your blood, where they grow a new immune system that will hopefully no longer attack your nerves. It is a massively agressive treatment, but the results are amazing and people are getting their lives back.
HSCT has proven to be very effective for people with active MS. It can reduce relapses and stabilise or even improve disability for some. It is a hugely promising treatment for MS, but it comes with high risks and there are lots of factors to consider. Only people who meet a very specific medical criteria can be considered. MY SISTER IS ONE OF THOSE PEOPLE. Unfortunately she isn't entitled to any help paying for this treatment ... which is where you come in. For the HSCT itself, plus medical care and drug costs during recovery we are aiming to raise £80,000. Yes a huge sum of money I know, astronomical, but at the end of the day it's only money - and she's more than worth every penny.
We are undertaking various fundraisers and events to raise as much as we can, and will post details as often as possible to keep you all updated - if you haven’t already joined the Facebook page feel free to join and share www.facebook.com/pg/beatMStoday