If 'we' the 176 million women across the globe with Endometriosis do not fund and conduct this project then no one will.
This work needs your funding, backing, support, and umf to make a meaningful impact on the lives of women around the world. Donate today and contribute in giving the lives of 176 million women with one of the most chronically painful disease hope.
If we don't conduct this research study and project then a positive and impactful change will never happen in our lifetime or for the next generation of women and young girls growing up and developing Endometriosis.
If we can work out what puts the disease into remission then we can be closer to realising what causes it and free women across the world from the grips of this chronic disease.
Even if you can not financially support, share this page 10 times, email it, post it, tweet it, send it to your local government, send it to that rich Auntie/Uncle, send it to a celebrity or influencer, send it to your local/national press. Together we can all make an impact.
Why does the Endometriosis Hope Study matter?
Women are taking their lives due to the condition, with a reported 50% of women with Endometriosis feeling suicidal. The Endo Hope Study is passionate that no woman with Endometriosis needs to feel neglected, at a loss with life and without hope. No more women should lose their jobs, relationships, wombs, reproductive organs, dreams, and lives because no one is funding research to investigate the factors that put the disease into remission. Factors that have been self-reported by women for centuries, but whose voices haven't had the platform, validation or respect to be heard. The Endometriosis Hope Study is driven to find the answers and give hope back to millions of women across the world.
The Endometriosis Hope Study is a groundbreaking piece of research and is the first of its kind to investigate the common remission factors of Endometriosis in one study.
Analysing all possible factors from the fields of medical, surgical, pharmaceutical, nutritional, physical movement, psychological, alternative healing and alternative therapies. Working to harness the collective wisdom of the Endometriosis crowd to discover the answers to the question: ‘which factors put Endometriosis into remission.’ The research results will help women across the world have their voices heard and reclaim their bodies and lives from the debilitating chronic disease.
But what is Endometriosis? I hear you say
'Endometriosis is a condition where tissue similar to the lining of the womb starts to grow in other places, such as the ovaries and fallopian tubes. Endometriosis can affect women of any age. It's a long-term condition that can have a significant impact on your life.' (NHS)
- Chronic pain in your pelvic area and or back
- Pain which stops you from doing your normal activities
- Painful during and or after sex
- Pain when peeing or pooping
- Feeling sick
- Blood in your pee during your period
- Chronic Fatigue
- Heavy monthly period flow
Did you know?
- Endometriosis affects 1 in 10 women around the world.
- It is reported in the top 20 most painful conditions a person can experience.
- It takes between 7-10 years on average to be diagnosed.
- 50% of women in the UK with Endometriosis end up feeling suicidal.
- Women with Endometriosis lose on average 6.3 hours a week due to their disease.
- In the UK the average woman over a 7 year period will lose £40,000.
- The average woman with Endometriosis in the UK will lose £5,000+ a year in lost earnings due to time off work.
- There is no known reported cure or treatment which puts the disease into remission in medical or academic literature.
- The vast majority of Endometriosis research focuses on surgical, hormonal and pharmaceutical solutions for the symptom management of the disease.
Yet… no one is researching the 1000’s of cases reported by women who have put their Endometriosis and or Adenomyosis into remission.
There are thousands of cases self-reported by women, GPs, MDs, healers and therapists who have put the disease into remission or completely healed Endometriosis. Simply Google 'healing Endometriosis' and in under a second 4.4 million hits appear. Yet no one is investigating these 'medical miracles'.
We can no longer ignore this injustice; endometriosis treatment is a matter of women’s health rights, sexual rights, and reproductive rights. The ongoing ignorance about it is simply compounding this injustice, and the Endo Hope study aims to address this.
Let us look into these injustices against woman kind further...
90% of women experience Pre Menstrual Syndrome (PMS) with many experiencing reduced fertility and chronic pain, of which Endometriosis and or Adenomyosis is one of the leading causes.
19% of the Male population experience erectile dysfunction can lead to an inability to get and keep an erection for sexual intercourse and therefore reduce fertility.
There is 5 times more funding into erectile dysfunction than there is into premenstrual syndrome symptoms such as dysmenorrhea. And on top of that, there has been £0 spent on research into finding solutions and or cures for women with Endometriosis who have chronically painful sex. So, yes, the lack of research into Endometriosis is a sexual rights violation, a women's rights violation, and reproductive rights violation. The Endo Hope Study is working to bring these violations to the forefront and bring new knowledge, voice, empowerment, and hope into the Endometriosis arena.
What are the outputs of The Endometriosis Hope Study?
-A book titled 'Endo Hope Study: x factors of radical remission of Endometriosis.'
-An online library of Endometriosis remission hope case studies.
-An online library of Endo Hope literature for the community to help increase their knowledge on Endometriosis and have access to the most up to date research.
-The project is looking to recruit young people and train them up as community action researchers, who will play a vital role in engaging the Dorset Endometriosis community and their networks in the study. They will be collating their stories, writing them up and uploading them to the database and website and learning how to code narratives. Providing vital opportunities to young people.
-A minimum of 50 Endo Hope podcast episodes featuring interviews with women, surgeons, healers, and therapists all sharing their experience of Endometriosis remission.
-A minimum of three journal articles that document women's Endometriosis remission case studies.
How will the money be used over the first two years? (study is estimated to take 3 years-this funding round is to secure the first two years)
£10,000 for supervisory, specialist and professional fees
£30,000 in basic researcher salary (£15k per year)
£4,000 study group advisory meetings travel and expense
£4,000 in travel and accommodation when conducting initial fieldwork and stakeholder meetings
£2,000 in books and resources
The wellbeing and health of women and thus the health of society is in your hands...
The Endometriosis Hope study is being conducted at The University of Plymouth under a PhD. program in the School of Nursing and Midwifery, by Bridie Appleby-Gunnill MA, BA (hons), who is a woman with Endometriosis. You can read the full research proposal by clicking here>> . The Endo Hope Study has been inspired by and aims to follow a similar methodological approach as Dr Kelly Turner’s research into stage 4 Cancers radical remission factors, click here for more info >>
For further questions please email firstname.lastname@example.org