Parents’ challenges’ in managing Neurodevelopmental Disorders
- Wide variety of conditions/names (global developmental delay, autistic, hyper) – can lead to confusion
- Stigma, lack of understanding and acceptance
- Lack of early diagnosis of condition and associated problems – delay in management can lead to poor quality of life for the child and the family
- Inconsistent service delivery and being discharged after autism diagnosis may cause parents to feel shocked and abandoned
- Difficult to understand the complexity, lack of range of intervention and no parent training on how to manage the condition
- Poor coordination in arranging services to transition patients into adulthood
What we do in SPARKS
- Conduct fortnightly parent training programs in Ruislip and Pinner to facilitate parents of children with NDD to offer support and advice. These programs are led by Developmental Paediatricians, Occupational Therapists, Psychiatrists and are aimed at empowering parents, friends and volunteers.
- Facilitate children’s sports activities – various charities and organisations such as The Turtles for Swimming, Disability Coach for Multi-Sport, Better Org for Gymnastics, Harrow Trampoline for Trampoline activities, etc.
- Parents provide support and advice to each other. Some parents attended support programs facilitated by HACS. Our Parents are also members of various organisations which support Autism, ADHD and other disorders where information and support is made available to the wider community.
- Children’s social activity and family days out. Engage in fun activities for the family through organisations such as Disability Coach, HOAC, etc.
- Our services are easily accessible to the Tamil speaking community and many others as the majority of programs are conducted in English