EB ,my son a little soldier.

by Jack Knight in Truro, England, United Kingdom

EB ,my son a little soldier.
Not quite
Unfortunately this project was not successful.

Hello and thank you for taking your time to look at my page. My son is a victim to symptom called EB This is our happy, funny, 10 month old...

by Jack Knight in Truro, England, United Kingdom

Hello and thank you for taking your time to look at my page. My son is a victim to symptom called EB 

This is our happy, funny, 10 month old. Who is the most bravest, strongest little boy! He may just seem like a 'normal' baby to most but he is fighting a rare condition.

What is EB?

Epidermolysis Bullosa (EB) is a group of genetic skin conditions that cause the skin to blister and tear at the slightest touch.

Those born with EB have skin so fragile they are called 'butterfly children' – their skin is quite simply as fragile as the wing of a butterfly.

https://www.nhs.uk/conditions/epidermolysis-bullosa/

As an inherited disorder with no cure, epidermolysis bullosa (EB) is a lifelong condition.  Although its severity does vary from person to person, every child born with EB will face challenges that affect every aspect of life, including the family’s life. As a child grows the family will face not only physical challenges but often financial, social, and emotional challenges too.  A support network is vital for a family affected by EB to survive and thrive.

The only thing I can ask for is to give him the best life he could wish for. Thank you for your time and help. The knight family

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