Courage is Compulsory

by in Crediton

Not quite
Unfortunately this project was not successful.

A book that shares the stories of three young adults with life-limiting conditions who are achieving remarkable things in their lives.

by in Crediton

Project aim

To publish a book that will help and inspire young people with life-limiting or life-shortening conditions and disabilities. The book is about accomplishing so much against the odds.

About the project

“One of my biggest fears is that nothing will come out of my life.... I don't necessarily want people to know who I am or know what I did…. I just want something to be different because of me.” Lucy Watts, aged 21

Courage is Compulsory shares the stories of Lucy, Tori and Sam; three young adults in their 20s, each facing enormous challenges because of life-limiting, or life-shortening, conditions. All are achieving remarkable things in their lives in spite of, or because of, their conditions.


Why is this book being written and who is it for?

“This book tells our individual stories, of our trials and tribulations, our hurdles and how we overcome them. It's our legacy to pass on to other disabled people, and their families, during their time of need.” Tori, aged 27

Lucy, Tori and Sam realise that writing their stories will be therapeutic for them but more importantly, they believe that their stories will help others:

* The book will be an inspiration to other young people facing similar challenges.

* It will show families of young people diagnosed with life-limiting conditions that their lives can be fulfilled and will give optimism for the future.

* It will show health and care professionals that they should never underestimate the potential of young people.

* It will describe to general readers stories of immense resilience and courage, and perhaps alter perceptions about disability.



How much funding do we need?

The total cost for the project is £12,000 and we need to raise the full amount, or we get nothing! The book will be about 80 pages, colour, 210mm x 209mm

This is a not-for-profit project

Proceeds from the sale of the book will go to Together for Short Lives, the leading UK charity for all children and young people with life-threatening and life-limiting conditions, and all those who support, love and care for them.

If we are fortunate enough to overfund this project, we will donate the additional funds to Together for Short Lives for their work supporting young people with life-limiting conditions making the transition to adult services. You can learn more about Together for Short Lives here

Lucy, Tori and Sam really want to make a difference with their lives. They deserve our support, as do the charities that provide help to others living with the conditions. We can help by getting as many people as possible to support this remarkable project.

Information about rewards

T shirts. Black only; available in S, M, L and XL. Excellent quality thick cotton; organic printing. Please ensure that you let us know which size you want.

See You in September, written by Joanne Teague, is a hilarious and uplifting true life adventure across Europe with a family. Jo was diagnosed with Ehlers-Danlos Syndrome a few months before the family set off. Signed by the author.

The Phlunk books, published by Strata Books, are children’s stories beautifully illustrated by Tori Elliott.

Grippy leads are unlike other dog leads on the market. They feature an innovative multi-loop design that allows you to walk your dog at various distances. Lucy’s dog, Molly, has one! Value £18.



Meet Lucy, Tori and Sam, and be inspired …….

I’m Lucy, I’m 21 and I have life-limiting complications of Ehlers-Danlos Syndrome. I am bed bound but able to spend short periods in my electric wheelchair which elevates my legs and can lay me down. I am fed intravenous nutrition into my bloodstream via a line in my heart, and receive the majority of my medications through this too.

I try to stay positive and use my experiences constructively, campaigning to improve health and social care and doing lots of charity work. I am Ambassador for Together for Short Lives, Global Youth Ambassador for the International Children’s Palliative Care Network, Trustee for the Pseudo Obstruction Research Trust and Ambassador for Dreams Come True. I am a Diana Award recipient and Jack Petchey Award winner.

I have a wonderful assistance dog in training, Molly, who is my world, and I live at home with my mum and elder sister. We have learnt to laugh over the 7 years I’ve been ill and we are very close. You can read more about me at, and you can like me on Facebook and follow me on Twitter


I’m Tori, 27 years old and an extremely motivated and enthusiastic person who happens to be in a wheelchair and has Spinal Muscular Atrophy Type 2.

I have a passion for travel and aiding other disabled people to do the same through Our SMAll Adventure, a free resource for disabled travellers (

Although classed as severely disabled, I’m determined and ambitious and I studied illustration at Falmouth University. I have illustrated children’s fiction books and my design work is something I can do completely independently when I usually have to seek help for the most mundane tasks.


I’m Sam, 29 years old and living in Somerset. I have Spinal Muscular Atrophy and I’m wheelchair bound but have never let my disability define who I am. I went to mainstream schools and studied Design and Marketing at university. I’ve had several jobs, including teaching Design and Fine Art.

I live a full life pursuing interests in the arts and gardening, helping friends at various Festivals and giving talks. I want to be able to make a difference and I hope that my experiences may inspire others.

My current project is to design and build (with lots of help) a caravan to make travelling easier for wheelchair users – a kind of House Box that will give them the freedom to travel and explore, with everything they need on board.

“It’s important to see the possibilities and not the boundaries in life.”


Supporting charities

Together for Short Lives:

Ehlers-Danlos Syndrome:

Spinal Muscular Atrophy Support UK :

The SMA Trust:

Muscular Dystrophy UK :

Hypermobility Syndromes Association:


Please help us to publish this book, and take advantage of one of the many excellent rewards on offer. For further information please contact Drummond Johnstone on 01363 776888 or email If you prefer to contribute to the project by cheque or credit card to the publisher, please phone.

Southgate Publishers Ltd, The Square, Sandford, Crediton, Devon EX17 4LW.


This project offers rewards in return for your donation.

£5 or more

£5 Reward

A valued contribution to the project.

£10 or more

£10 Reward

A copy of the book.

£10 or more

£10 Reward

A digital version of the book will be emailed to you.

£15 or more

£15 Reward

A copy of the book and a signed photo of the authors.

£20 or more

£20 Reward

The book and your name included in the book as a supporter.

£30 or more

15 of 100 claimed

£30 Reward

The book, your name in it, plus a limited edition Courage is Compulsory T shirt. Black only. S, M, L and XL. Be sure to let us know the size! Thick cotton, organic printing. See photo opposite.

£35 or more

2 of 6 claimed

£35 Reward

The book, your name included and a copy of See You in September, signed by the author.

£38 or more

3 of 6 claimed

£38 Reward

The book, your name in it and a Grippy dog lead. See section about Rewards opposite.

£40 or more

£40 Reward

Three copies of the book and up to three names included as supporters. Great for Christmas presents!

£50 or more

1 of 3 claimed

£50 Reward

The book, your name in it and a 30 min Skype interview / conversation with Lucy.

£50 or more

2 of 3 claimed

£50 Reward

The book, your name in it and a 30 min Skype interview / conversation with Tori.

£65 or more

3 of 5 claimed

£65 Reward

The book, your name in it, plus a dedication in the front of the book written by you (max 15 words)

£80 or more

£80 Reward

Six copies of the book, up to six names included in it as supporters. Great for Christmas presents!

£100 or more

8 of 10 claimed

£100 Reward

A copy of the book and your organisation's logo to be featured in the book as a supporter. We will also include words about your company. We would hope that you might feel able to add to the pledge as it is a very cheap form of advertising!

£200 or more

0 of 1 claimed

£200 Reward

Lucy to speak at a conference or event (excluding expenses)

£200 or more

0 of 1 claimed

£200 Reward

Tori to speak at a conference or event (excluding expenses)

£500 or more

1 of 3 claimed

£500 Reward

An invitation to the book's launch in London for two people. Launch will be hosted by Together for Short Lives. Includes a copy of the book signed by the authors. This is transferable to a person chosen by you. Date to be confirmed but it will be Oct/Nov.

£1,000 or more

0 of 3 claimed

£1,000 Reward

Your logo featured on the back cover of the book as a key supporter, and an invitation to the launch of the book in London, for two people, as special guests. Plus five copies of the book.

£45 or more

1 of 1 claimed

£45 Reward

The book, your name in it and a copy of them Phlunk and The Phlunk's Wordwide Symphony, illustrated by Tori and signed by her. Also a Phlunk keyring and a drawing.

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