Project affiliate - Aviva Plc logo image

Peer support - bringing our community together.

by Heartburn Cancer UK in Basingstoke, England, United Kingdom

£290

raised of £2,000 target

10

supporters
14% 18 days left
Flexible funding – this project will receive all pledges made by 7th October 2020 at 11:59pm

We want to extend support for those suffering with Barrett's oesophagus and oesophageal cancer by creating an online peer support network

by Heartburn Cancer UK in Basingstoke, England, United Kingdom

Who we are

We are a small charity aiming to raise awareness of the link between suffering with persistent heartburn and having oesophageal cancer or a pre-cancerous condition called Barrett’s oesophagus.  We support sufferers and their loved ones and provide information to the general public and the medical profession.

Around 8000 people die in the UK every year from oesophageal cancer. 

That’s 22 every day.

Heartburn Cancer UK was founded by Mimi McCord following the tragic death of her husband Michael, aged just 47, from the disease.  His death, like many others, was preventable. Michael had suffered from heartburn for much of his adult life.  If he had known about the dangers associated with this he could have sought medical help and the outcome might have been very different.  We know that, with the right information, 59% of oesophageal cancer cases are preventable.

Mimi’s mission, then and to this day, is to raise public awareness of the dangers of persistent heartburn and to urge people to seek medical advice from their GP.   As a charity we provide support and education to sufferers of persistent heartburn, Barrett's oesophagus and oesophageal cancer and we work towards earlier diagnosis to help save lives and improve outcomes.

1595943845_mimi_awareness.jpg

What we are trying to do

Social distancing as a result of Covid-19 means that we have had to suspend our usual support group meetings for sufferers of Barrett’s oesophagus and oesophageal cancer and has highlighted the need for new ways of providing support.  Prior to Covid-19 we offered peer support in specific geographical areas but we want to establish an online forum that means we can support sufferers regardless of their location.  This will allow us to extend and update our service, supporting those who may not feel confident to attend meetings, who live in areas where there is no physical group or who work or have a busy family life and need a support network that they can dip into at times that suit them.  Funds will be used to enable us to set up and monitor the forum, to spread the word about the service across social media and in healthcare settings and other community hubs,  to provide any clinical advice needed and to ensure that all those who use it get the most they can from the online community we create.

Why is this important?

1598286057_dreamstime_s_182132539.jpg1598399208_senior_engaged_with_tablet.jpg1598344791_dreamstime_s_179475726.jpg

1598282550_concentrating_senior_on_mobile.jpg1595947319_support.jpg1598282526_senior_on_tablet.jpg

Our community is not in a specific location but is a group with specific health conditions and similar anxieties and experiences.  Living with cancer or with a condition which may lead to cancer, can be extremely testing, affecting mental and physical health.  Evidence shows that peer support projects such as this can help sufferers to feel connected, informed and understood, improving their resilience and empowering them to face the many challenges that their conditions raise and to have a better quality of life.

The importance of support is best described by those that need it, and so to conclude, here are a few words from people who have been in contact over the past few months:

  • Jean – Cambridgeshire  

“I just don’t have the words to explain what a difference you have made to me today, thank you just isn’t enough.   For the first time in so long I don’t feel like a list of problems being examined, I feel like a person. I finally understand what has been causing the pain and what the medication does. Before I spoke to you, I just didn’t know what I would do if you couldn’t help me, but you have made the future seem hopeful – Thank you so very, very much”

  •  John – Scotland 

“I can’t thank you enough. Just a response has made all the difference, it genuinely has. I ate a little more tonight and the pain came back so it is back to eating little. I was desperate and scared. Just knowing someone out there cared really helped. 

Again, I can’t emphasise enough the difference you have made, and I mean that” 

  • Jennifer – Staffordshire 

“I came across this wonderful charity within my first 6 months and they very kindly gave me advice and support which I feel is so valuable when you are diagnosed with something like Barrett’s Oesophagus, I feel they make up for the lack of support within the healthcare system in my area."

With your support we can create a virtual community which will enable us to reach many, many more people like these and to make a real and lasting difference to everyday lives.

Thank you.  

Rewards

This project offers rewards in return for your donation.

£5 or more

High Five!

High Five! £5 might not seem much but to us it means everything. Donate £5 and know that we are giving you a virtual high five to say thank you.

£10 or more

A letter of thanks from our Chair of Trustees

Donate £10 and receive an e mail with a letter of thanks from our founder and Chair, Mimi McCord.

£25 or more

A public thank you

Donate £25 and receive a public thank you on one of our social media platforms to acknowledge your support of our project and the difference your donation will make to sufferers.

£50 or more

Your name on the screen!

Donate an incredible £50 and have your name displayed on a dedicated page on our website to show our appreciation of your generosity

Let's make 'Peer support - bringing our community together.' happen

Payment and personal details are protected