Hypermobility spectrum disorder

by Jodie bolton jones in Bournemouth, England, United Kingdom

Hypermobility spectrum disorder

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£1,600 target 8 days left
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Flexible funding – this project will receive all pledges made by 27th January 2021 at 8:09pm

I have hyper-mobility spectrum disorder which will affect me for the rest of my life. I need help to afford an orthopaedic mattress and bed

by Jodie bolton jones in Bournemouth, England, United Kingdom

hello everybody, my names jodie and im 18 years old. Unfortunatley, I have hypermobility spectrum disorder and this is something there is no cure for and i will suffer with this for the rest of my life and im afraid its getting worse every day which is really scary. The doctors said I was born with it but due to lack of exercise because of Covid and because my bed slats are broken and the metal is bent and I have a poor quality mattress which was borrowered, my back problems now have spread to my neck Which is giving me migrains and contant headaches. I am in EXTREME pain 24/7 and most of my days are spent in a boiling hot bath trying to numb the pain. My body cracks and pops whenever i move and the specialist i see every week quoted themselves that they have never seen this before. I am self employed and because of Covid I have run through all my savings paying for food and rent and I am left struggling unfortunately, I am now sleeping on the floor and would really wish if anybody could help me with the sum of a new mattress and bed. I know this isnt usually something people ask for help towards and it may not sound like my condition is as bad as others but i just want my pain to be over and i wish somebody could understand how i feel because i feel like then finally somebody would know how much help i need. i have tried a mattress in a shop which is £1000 and this was the first time in my life that i can remember my back not hurting which made me cry as it was shocking and such a beautiful feeling. i wish i could of bought it then with a better bed but unfortunately i cant and i dont have anyone to help.

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