The Big Sunflower Project

To raise awareness of the rare neuromuscular conditions known as centronuclear and myotubular myopathy by growing sunflowers.

The Big Sunflower Project

My father and I were diagnosed with the rare neuromuscular condition centronronclear myopathy in 1998. Shortly afterwards I set up The Information Point for Centronuclear and Myotubular Myopathy website, to raise awareness of the condition and in 2011, to mark the ten year anniversary of the website, I ran first Big Sunflower Project. The concept of the project is simple - to raise awareness of centronuclear and myotubular myopathy by growing sunflowers.This year Mr Fothergills and Thomas Etty have donated sunflower seeds, so as in previous years, the seeds are free. However, requests for seeds are down this year, as for the first time, due to lack of funding, I need to request a stamped addressed envelope. I would really love to be able to post the seeds to participants at no cost too, so have set up this Crowdfunder page with the aim of raising funds to buy stamps and envelopes. 

With just a small amount of funding, it is hoped to build on the success of the first three years and get people having fun growing sunflowers up and down the UK and in Europe too.  Last year sunflowers were grown by families, schools, on allotments, by community groups and even a vineyard and participants threw themselves into the project, not only by growing a sunflower and taking photos of these for display online but by putting up posters at the sites where the sunflowers were grown and writing about the project in newsletters and blogs. Many of the groups who took part were community and voluntary groups, who used the seeds in their own projects and it was lovely to be able to support them in their work by giving them seeds.  In 2013 the project received 398 photos from 40 individuals and groups - it would be amazing to beat that in 2014.

Further information* The Big Sunflower Project: How it all began* Toni and Mike's story* History of The Information Point * Photos from The Big Sunflower Project 2013* Some stories from our sunflower growersWhat others say about the project* Chester The Giant City* Sliced Bread Productions* Turing's Sunflowers

Sunflower grown by Mark, Great Sutton.            Sunflowers grown by Bob.         Sunflower grown by Pernille.

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