Making Memories of Moo

To help a family with a young baby with a life-limiting to create some lasting memories of their time with him by raising funds for short breaks, day trips and activities. To raise awareness of Mitochondrial Disease and The Lily Foundation.

I am fundraising for a little baby boy, Malachy Spriggs, (11 mths) who has agenesis of the corpus callosum and Subcortical Heterotopia and a condition of the mitochondrial family that is life-limiting and there is no known cure. 

Malachy is the youngest son of Natalie and Ben Spriggs of Wesham, Lancashire and baby brother to Ellis. Since he was born on 6th July 2012, Malachy has been a fighter, constantly proving the experts wrong. Among the doctors 'predictions' to mum and dad was that he would never smile - the photograph below shows otherwise.

little boy with mitochondrial disease

Malachy is only the 39th male globally to ever have this, and despite the daily fight that he and his parents put up, the family are devasted and essentially living on borrowed time.

This time is so precious for Malachy and his family and we are fundraising to pay for day trips and activities, for them to build some lasting memories together. Any surplus will pay towards funeral and other expenses when the time arises.

Please help us to raise awareness of this disease and to bring some happiness into the lives of this young family in the time remaining.

 

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